HLH stands for hemophagocytic lymphohistiocytosis. It is a life-threatening condition that can be defined as either primary or secondary HLH. Primary, or “familial,” HLH is when the condition is inherited.
Is there a cure?
The true cause of HLH/FHL is not known. HLH patients with an underlying genetic defect can only be cured when the defective immune system is replaced by a healthy one which is what happens with a hematopoietic stem cell transplant.
What is a “Stem Cell Transplant”?
Hematopoietic stem cell transplantation is the transplantation of multipotent hematopoietic stem cells, usually derived from bone marrow, peripheral blood, or umbilical cord blood. It may be autologous, allogeneic or syngeneic.
Does the bone marrow transplant hurt?
Bone marrow donation is done under general or regional anesthesia so the donor experiences no pain during the donation procedure. Discomfort and side effects after the donation vary from person to person. Most marrow donors experience some side effects. … Muscle pain.
Where can I get more information on how to donate?
https://organdonor.gov/index.html
I saw my three grandson’s last night. Marcos Jr., Zachery and Joseph and they lived with me 12 years of their lives. I want them to live a full life time. Just saying. A grandmothers plea for them to continue to live many more years.What I wouldn’t do to make sure their life is saved. I can only pray that they find a donor or donors who will step forward, that is the match and save their lives. My Grandson, Munnchie, Granddaughters Abby and Savannah was playing frizzbee last night. Went to ‘Sams’ got a box of ice cream sandwiches and got stuck at a railroad track. So we ate an ice cream sandwich. Said this is cool! We need to do this again. Then a thought creeped in my mind! What if Munnchie, Zach or Jojo’s is not here no more. I had all I could not to cry. I waited till I dropped them off at their home. I am believing for the Lord Jesus to guide the right ‘Person’s’ to donate in His Precious Name. Amen.
"Only Life Changes" 